About us
NFDI4Health is part of the National Research Data Infrastructure (NFDI), funded by the federal and state governments. NFDI4Health aims to build a comprehensive inventory of German epidemiological, public health, and clinical study data. The analysis of these data is essential for the development of new therapies, cross-cutting care approaches, and preventive measures. Personal health data require special protection. Therefore, NFDI4Health’s stated objective is to combine security with usability. The consortium comprises an interdisciplinary team from 14 partner institutions. In addition, 52 renowned institutions and individuals from the healthcare sector have pledged their participation; letters of support have been received from 8 (inter)national institutions.
Goals
NFDI4Health pursues five main objectives:
1. Further expansion and optimisation of our infrastructures and services for FAIR health data
2. Ensuring the sustainability, interoperability, and quality of our offerings
3. Promoting a cultural shift towards FAIR data sharing in the health sector
4. Involving a broad community and the general public
5. Fostering the implementation of the European Health Data Space
Task Areas
Prof. Dr. Iris Pigeot
Spreaker of the consortium
(Quelle: / Source: Budde/BIPS)
(Co-)applicant institutions and (co-)speakers:
Berlin Institute of Health at Charité (BIH)
German Institute of Human Nutrition Potsdam-Rehbruecke (DIfE)
Fraunhofer-Gesellschaft (Fraunhofer Institute for Digital Medicine MEVIS; Fraunhofer Institute for Algorithms and Scientific Computing SCAI)
Heidelberg Institute for Theoretical Studies (HITS)
Network of Coordinating Centres for Clinical Trials – KKSN e.V.
Max Delbrück Center for Molecular Medicine (MDC)
TMF – Technology, Methods, and Infrastructure for Networked Medical Research
University Medical Center Göttingen
Leibniz Institute for Prevention Research and Epidemiology – BIPS
Applicant institution
Participating Institutions and Individuals
Arbeitsgemeinschaft der Wissenschaftlichen Medizinischen Fachgesellschaften (AWMF) e. V.Barcelona Institute for Global Health (ISGlobal)
Bundesinstitut für Öffentliche Gesundheit (BIÖG)
de.NBI e.V.
European Clinical Research Infrastructure Network (ECRIN)
Federal Institute for Drugs and Medical Devices (BfArM)
German Association for Medical Informatics, Biometry and Epidemiology (GMDS) e. V.
German Association of Medical Faculties (MFT)
German Cancer Research Centre (DKFZ)/ NFDI Consortium GHGA
German Institute for Standardisation (DIN)
German National Cohort e.V. (NAKO)
German Public Health Association (DGPH)
German Society for Epidemiology (DGEpi)
Hannover Medical School (MHH)
Health-RI
Heidelberg University Hospital – Institute for Medical Informatics (UK Heidelberg)
Helmholtz Munich (HGMU)/GINI Study, LISA Study, KORA Study
Initiative of German Practice-Based Research Networks – DESAM-ForNet
Johannes Gutenberg University Mainz/ Gutenberg Health Study (UM Mainz)
Jena University Hospital, Centre for Clinical Studies (CTU Jena)
Martin Luther University Halle-Wittenberg/CARLA Study (UK Halle)
Max Rubner-Institut (MRI)/KarMeN Study, ErNst Study
McGill University Health Centre Royal Victoria Hospital, Maelstrom Research
National Institute of Health and Medical Research (INSERM, Institut National de la Sante et de la Recherche Medicale)/CONSTANCES Study
OFFIS e.V.
University Hospital Bonn, Clinical Trials Centre (CTU Bonn)
University Hospital Essen, Institute of Medical Informatics, Biometrics and Epidemiology (IMIBE)/Heinz Nixdorf Recall Study
University Hospital Frankfurt/NUM/RACOON/NUM Study Network/Senckenberg
University Hospital Cologne (UKK)
University Hospital of Regensburg, Center for Clinical Studies (CTU Regensburg)
University Hospital of RWTH Aachen/NFDI Consortium NFDI4Microbiota, NUM/NATON
University of Bologna/NU-AGE Study
University of Bonn/DONALD Study
University of Duisburg-Essen, Center for Clinical Trials Essen (CTU Essen)
University of Erlangen/Centre for Clinical Trials Studies (CTU Erlangen)
University of Freiburg/STRATOS Initiative
University of Groningen/Lifelines biobank
University of Kiel/ FoCus Study (U Kiel)
University of Magdeburg, Coordination Center for Clinical Studies (CTU Magdeburg)
University of Naples Federico II/Diet4Microgut Study
University of Witten/Herdecke, Centre for Clinical Trials (CTU Wiitten/Herdecke)
Virtual Physiological Human Institute for Integrative Biomedical Research (VPHi)
Prof. Dr. Anne-Laure Boulesteix | Ludwig-Maximilians-Universität München (LMU)
Andrew Boyd | University of Bristol/UK Longitudinal Linkage Collaboration (UK LLC)
Dr. Kai Heitmann | ART-DECOR Open Tools
Prof. Dr. Dennis-Kenji Kipker | cii.research gGmbH
Dr. Claudia Niessner | Karlsruhe Institute of Technology (KIT)
Prof. Dr. med. Peter Robinson | Berlin Institute of Health (BIH)
PD Dr. med. Meike Rybczynski | University Medical Center Hamburg Eppendorf (UKE)
Prof. Dr. Dagmar Waltemath | University Medicine (UM) Greifswald
Norman Zerbe | EMPAIA International e.V.
